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New Quarterly Data Reports – April 2024
Quarterly reports feature new information on 54 genetic communities, including 9 new groups.
Read MoreLeading the Way: An Interview with Rebeca Ridings Figueroa
Meet Rebeca Ridings Figueroa, Cure CLCN4’s Research Program & Charity Manager.
Read MoreNew Options Available for Claiming Simons Searchlight Survey Rewards
New instructions on how to redeem your online rewards for completing surveys.
Read MoreJuniper’s Story Living With ASXL3
Learn more about Juniper’s ASXL3 story.
Read MoreJourney of Hope: Families Share Their Stories with Simons Searchlight
Listen to the heartfelt experiences shared by families like yours.
Read MoreHelping Rare Disease Research with CRIDs
Learn how to create and add your CRID to your dashboard.
Read MoreMariana’s Story Living With HECW2
Learn more about Mariana’s HECW2 story.
Read MoreFranklin’s Story Living With NR4A2
Learn more about Franklin’s NR4A2 story.
Read MoreOn-Demand: Rare Disease Awareness Month Webinars
Watch these insightful webinars on-demand to stay informed.
Read MoreRevolutionizing Healthcare with Dr. Wendy Chung
Listen to Dr. Chung’s interview on the Autism Weekly podcast.
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