Posts

New Options Available for Claiming Simons Searchlight Survey Rewards

New instructions on how to redeem your online rewards for completing surveys.

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Juniper’s Story Living With ASXL3

Learn more about Juniper’s ASXL3 story.

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Journey of Hope: Families Share Their Stories with Simons Searchlight

Listen to the heartfelt experiences shared by families like yours.

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Helping Rare Disease Research with CRIDs

Learn how to create and add your CRID to your dashboard.

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Mariana’s Story Living With HECW2

Learn more about Mariana’s HECW2 story.

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Franklin’s Story Living With NR4A2

Learn more about Franklin’s NR4A2 story.

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On-Demand: Rare Disease Awareness Month Webinars

Watch these insightful webinars on-demand to stay informed.

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Revolutionizing Healthcare with Dr. Wendy Chung

Listen to Dr. Chung’s interview on the Autism Weekly podcast.

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Leading the Way: An Interview with Amber Freed

Amber Freed leads SLC6A1 Connect, uniting for SLC6A1 research, family support, and awareness.

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Wendy Chung Interviewed for Rare Revolution Magazine

Read about Dr. Chung’s impactful career in rare disease research in this article.

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